About Sarah Clark
I am attracted to anything to do with health and wellness.
Due to trauma from the medical journey and several misdiagnosises I am committed to finding my own ways to get as well as I can and get back aspects of my health I thought were lost forever. I got “lost” for many years in the medical system and I never thought I would be well enough to study or work ever again, but I have made huge progress since my formal EDS diagnosis back in February 2020 and I am currently studying part time for a Neuropsychology MSc which I hope to eventually put to use in some research into the clinical benefits of floatation therapy.
I now have a personal interest in the diagnostic journey; medically-induced PTSD from the diagnostic journey; communication skills used in healthcare settings; differences in opinions and perspectives of the presenting complaint; the difference a diagnosis makes to someone’s life; stages of chronic illness identity and finally the adaptations a patient makes in learning to self-manage following a correct medical diagnosis. I continue to do what I can in the fields of both patient advocacy and educating medical professionals about complex and rare illnesses.
ARGUABLY SOME PEOPLE MIGHT SAY I JUST “LIKE COLLECTING LABELS”. However I am living proof “of the positive difference a diagnosis can make”
I DO LOVE LISTS 🙂 – SO HERE IS A LIST OF MY CURRENT DIAGNOSES:
- hypermobile Ehlers-Danlos syndrome (hEDS)
- Mast cell activation syndrome (MCAS)
- Median arcuate ligament syndrome (MALS)
- Dysautonomia
- Complex Post-Traumatic Stress disorder (C-PTSD)
- Obsessive Compulsive disorder (OCD)
- Autism Spectrum Disorder/Condition (ASD)
- Premenstrual Dysphoric Disorder (PMDD).
I have taken a deep-dive into self-management and how I can best navigate the daily struggles of my complex existence, how I can maximise my human potential, and be the happiest and healthiest version of myself despite several chronic conditions.
I want to go out into the big bad beautiful world and be the very best version of myself I can, the kindest I can be to myself and kindest most compassionate I can be to others.
Above all, I want to inspire others, give others who are currently struggling hope. And although I am still very much “work in progress”, I want to show people what it is possible to overcome if you have the right mindset and patience.